| nahconsultatie.nl | NAH Consultatie Bureau HoopWerkt – Just a Fair Chance | NAH Consultatie Bureau HoopWerkt – Just a Fair Chance provides information and support to individuals dealing with Non-Congenital Brain Injury (NAH) and their families. | Neurology → Brain Injury 48 Neurology → Non-Acquired Brain Injury 13 | nah 77 rehabilitation 1512 care 12338 | |
| nfk.nl | Dutch Federation of Cancer Patient Organizations | The Dutch Federation of Cancer Patient Organizations (NFK) is an organization dedicated to advocating for the interests of people with cancer, their families, and those with a predisposition to cancer. | Social Organization → Patient Organizations 259 | surveys 73 cancer 631 patient 4082 research 8967 care 12338 | |
| parkinsonnet.nl | ParkinsonNet | ParkinsonNet is a nationwide network of healthcare providers committed to providing the best possible care for individuals with Parkinson's disease and parkinsonism. | Social Organization → Patient Organizations 259 Neurology → Parkinson’s Disease 98 | parkinson 120 healthcare provider 474 participant 1934 network 11123 care 12338 | |
| icconnect.nl | IC Connect | IC Connect is an organization dedicated to supporting patients and their families throughout and after their stay on the intensive care unit. | Social Organization → Patient Organizations 259 Health → Medical Care & Services 29461 | ic 20 pain 1919 patient 4082 family 6462 care 12338 treatment 21203 | |
| parkinson-vereniging.nl | Parkinson Association | The Parkinson Association provides information, support, and activities for people with Parkinson's disease and their families. | Social Organization → Patient Organizations 259 Neurology → Parkinson’s Disease 98 | parkinson 120 autonomy 155 cafe 1622 research 8967 member 10154 care 12338 | |
| huntington.nl | Huntington Association | The Huntington Association is an organization dedicated to improving care and research into the disease of Huntington's. | Social Organization → Patient Organizations 259 Diseases → Neurological Diseases 21 | donation 5110 newsletter 6504 research 8967 membership 10442 care 12338 | |
| patientervaringsverhalen.nl | Patient Experiences | The website provides a collection of patient and caregiver experiences, aimed at improving healthcare and supporting research. | Social Organization → Patient Organizations 259 Research → Research Methods 55 | caregiver 1167 patient 4082 collection 7566 research 8967 care 12338 | |
| stichtingslapeloosheid.nl | Stichting Slapeloosheid | The website of Stichting Slapeloosheid provides information and support for individuals experiencing chronic insomnia, advocating for improved care and recognition for this condition. | Social Organization → Patient Organizations 259 Hygiene & Environmental Factors → Sleep 419 | insomnia 31 donation 5110 volunteer 8367 research 8967 book 11396 care 12338 | |
| gastrostars.nl | Stichting Gastrostars | The website of Stichting Gastrostars is a patient organization dedicated to providing support, information, and connection for individuals with gastroparese and other related physical conditions affecting digestion. | Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 | patient organization 16 peers 89 care 12338 | |
| aangeborenhartafwijking.nl | Patient Association for Congenital Heart Defects | The Patient Association for Congenital Heart Defects (PAH) provides support and information for individuals with congenital heart defects and their families. | Social Organization → Patient Organizations 259 Anatomy & Systems → Heart 53 | peers 89 family 6462 research 8967 care 12338 treatment 21203 | |
| eetstoornissen.nl | WEET | WEET is a patient association dedicated to advocating for the interests of individuals with eating disorders and facilitating contact with healthcare providers and policymakers. | Social Organization → Patient Organizations 259 Mental & Emotional Well-Being → Eating Disorders 199 | relatives 27 eating disorder 55 help 864 patient 4082 care 12338 | |
| vmdb.nl | VMDB | The website of the VMDB (Association for Manic Depression and Involved Parties) provides information and support for individuals with bipolar disorder and their loved ones. | Social Organization → Patient Organizations 259 Health → Mental & Emotional Well-Being 23704 | toolkit 157 association 8562 care 12338 | |
| debra.nl | DEBRA Nederland | DEBRA Nederland is a patient association dedicated to improving the quality of life and care for individuals with Epidermolysis Bullosa (EB). | Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 | peer support 68 anbi 120 donation 5110 association 8562 care 12338 | The Hague → Scheveningen 1625 |
| sepsisnet.nl | SepsisNederland | SepsisNet is an organization dedicated to increasing knowledge about sepsis and improving care for sepsis patients. | Social Organization → Patient Organizations 259 Disease & Treatment → Chronic Diseases 1168 | knowledge 3528 patient 4082 care 12338 event 45199 | |
| puntvoorparkinson.nl | Punt voor Parkinson | Punt voor Parkinson is an organization that provides all care for people with Parkinson's disease or parkinsonism in one location. | Social Organization → Patient Organizations 259 Neurology → Parkinson’s Disease 98 | parkinson 120 healthcare professionals 235 research 8967 care 12338 treatment 21203 | Overijssel → Twente 2578 |
| taskforcecancersurvivorshipcare.nl | Taskforce Cancer Survivorship Care | The Taskforce Cancer Survivorship Care website aims to raise awareness, provide information, and inspire collaboration to improve care for cancer survivors. | Social Organization → Patient Organizations 259 Diseases → Cancer 546 | point of contact 27 action plan 138 congress 500 knowledge 3528 care 12338 | |
| leverpatientenvereniging.nl | Dutch Association of Liver Patients (NLV) | The Dutch Association of Liver Patients (NLV) is a patient organization that provides information, support, and advocacy for individuals with liver diseases and their families. | Social Organization → Patient Organizations 259 Essential → Health 91589 | liver 37 advocacy 357 member 10154 care 12338 | |
| neurofibromatose.nl | Neurofibromatose Vereniging Nederland | The Neurofibromatose Vereniging Nederland (NFVN) is an organization dedicated to individuals directly or indirectly affected by neurofibromatosis (NF), aiming for improved care, greater recognition, and an inclusive society. | Social Organization → Patient Organizations 259 Disease & Treatment → Diseases 829 | healing 1148 patient 4082 care 12338 | North-Holland → Zaanstreek-Waterland 482 |
| hchwa-d.nl | Vereniging HCHWA-D | The Vereniging HCHWA-D provides support and information to individuals affected by the Katwijk’s disease (HCHWA-D). | Social Organization → Patient Organizations 259 Rare Diseases → Genetic Disorders 48 | disease 285 association 8562 membership 10442 care 12338 | South-Holland → Katwijk 2183 |
| ypsilon-amsterdam.nl | Ypsilon Amsterdam and surroundings | Ypsilon Amsterdam and surroundings is a association dedicated to supporting family members and loved ones of individuals with an increased vulnerability to psychosis in the Amsterdam and surrounding region. | Family → Caregiving 18 Social Organization → Patient Organizations 259 | psychosis 21 story 8285 membership 10442 care 12338 training 28133 | North-Holland → Amstelveen 3180 |
| zeldzaamziek.nl | Stichting Zeldzaam Ziek | The Zeldzaam Ziek website aims to provide information, advice, and a platform for sharing experiences related to rare and chronic diseases. | Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 | disease 285 patient 4082 foundation 6678 story 8285 care 12338 | |
| zeldzameaandoening.nl | VSOP | This website, zeldzameaandoening.nl, provides information about rare diseases and connects European policy with Dutch healthcare. | Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 | rare disease 12 theme 4015 network 11123 care 12338 | Netherlands → Utrecht 48901 |
| groeihormoonpatient.nl | Groeihormoon Patiënten Collectief | The Groeihormoon Patiënten Collectief (GHPC) is a patient alliance dedicated to improving and ensuring optimal care for individuals using growth hormone in the Netherlands. | Social Organization → Patient Organizations 259 Disease & Treatment → Chronic Diseases 1168 | patient organization 16 institution 245 insurer 446 newsletter 6504 care 12338 | |
| lewybodydementie.nl | N.V. | This website aims to provide information about Lewy Body Dementia (LBD) and raise awareness about this form of dementia. | Social Organization → Patient Organizations 259 Disease & Treatment → Neurological Disorders 100 | knowledge bank 99 dementia 674 home care 827 medication 1164 care 12338 | |
| weshare2care.nl | Stichting Share2Care | Share2Care is a non-profit foundation that involves patients in research and healthcare innovation. | Social Organization → Patient Organizations 259 Entrepreneurship → Social Entrepreneurship 311 | impact 926 insights 976 patient 4082 research 8967 care 12338 | |
| tromboseoverlevers.nl | Tromboseoverlevers | Tromboseoverlevers.nl is a platform providing information, experiences, and practical assistance to individuals who have suffered from thrombosis. | Social Organization → Patient Organizations 259 Disease & Treatment → Cardiovascular Diseases 91 | thrombosis 14 tool 3907 community 7931 story 8285 care 12338 | |